If you are reading this, you probably either know me and are following my journey or you are researching and connecting with others who may share your story or the story of a loved one. Either way, I’m glad to have you here. I have been contemplating a blog for quite some time as a place to go to log my daily struggles with Epilepsy. I spend a lot of time researching Epilepsy and reading forums and the stories of others who may be like me. I often find that many people have questions that go unanswered or they just want to connect with people who truly understand what this life is like. I have been living with Epilepsy for 32 years and I have a lot of stories to tell. If I can help even one person through this blog then I will feel highly accomplished. Plus – I am sure that my life connections who follow me on my normal social media channels are pretty sick and tired of all of my posts about medicines that don’t work, brain fog, cuts and bruises, and all the other struggles of an Epileptic.
So who am I? My name is Angela and I live outside of Atlanta… Cumming, Georgia to be exact. I am a wife, a mom, a dog lover, a student, a sister, a friend, a jokester, a crossword puzzle fanatic, and an ”Epileptic”. Notice I didn’t mention that I’m a hard working career woman. That’s because I have been on a medical leave of absence for 9 months after a really rough seizure made me step back and realize that if I didn’t step back and take care of me then I would sooner rather than later not live to be any of those things. My entire life I have desperately tried to never let my E define who I was. I wanted to pretend that it was just some random thing I dealt with from time to time like a sinus infection or a stomach ache. I didn’t like to believe that it was a part of who I am. At 39 years old (oh God… that’s so dangerously close to 40) I have finally accepted my fate and decided that while it is something that I will live with the rest of my life, I have to fully embrace it in order to take control of it. I have Epilepsy, but it doesn’t have me.
I was diagnosed when I was 7 years old. This was when I had my first Absence seizure, though I always knew it as a Petit Mal. I had my first Generalized Tonic Clonic, or Grand Mal seizure, 2 years later. We knew very little about epilepsy back then. There were very few medications available and hardly any research done or published to truly understand what it was. All I really knew was that I was different than other kids and I really hated it. More on that in future posts. I had seizures through my teenage years and through my very early twenties. Ironically they stopped when I was 23 and I thought that I was finally done with all the BS. After all, my neurologist did tell me that I would probably “grow out of it” like it was a pair of shoes or something. Then my 30s hit and back came the seizures. Only a little bit at first and I refused to see a doctor or take meds or even accept that my shoes did in fact still fit. As the years have passed I have been having more seizures than ever before and it has become part of my daily life. That’s where I am now. I will definitely share more of my story, so if you are interested please follow along. I look forward to sharing my past, present, and future with you all. And please – feel free to share yours too!
“I’m not an epileptic but you’re an arsehole. I’m important. I matter. I can do anything. I’m a sexy, strong woman that happens to have epilepsy. Do you get it? I have epilepy but it’s not who I am.” – Ray Robinson, Electricity